We had a chocolate-filled Easter weekend in Scotland for the Christening of some friends kids. Fin enjoyed his eggs and I enjoyed Ross's... Kirsty and Kenny decided to ask for donations via archiesmountain so more than £500 was added to the total as a result of their generosity - thanks!!!
Been a busy couple of weeks with our trip, hospital appointments and moving house. We had an EEG (scan of Ross's electrical brain activity) last Wednesday. He had lots of these in France but this was the first one in UK. To me the tracings on the screen looked very similar to the ones in France, still pretty chaotic, but the technician doing the scan seemed to think it wasn't as bad as I thought. We'll have to wait for our next paediatric appointment to get find out what it all meant.
We've also moved house so are finally into our own place again. Boxes and stuff everywhere, but it's great to be able to get settled once and for all. We're in Bookham in Surrey, not far from where we were before but we've really noticed the reduced space having been in 5 bedroom houses for the past 2 years - we've restocked the local charity shop and the garage is still pretty full. Bookham is very nice and we're close to the common with lots of woodland paths - no excuse now for not doing some longer runs in the run-up to Mont Blanc.
On Saturday there were 2 separate events to raise money for the NSE, organised by our intrepid NSE marathon runners;
- Rory McMillan, Kerry Crawford, my family and friends and everyone at Ballygrainey Presbyterian Church in Northern Ireland held a charity car-wash, coffee morning, and cake and vegetable sale and raised an amazing £2500
- David Gallagher's business network in Bedford raised £1000 at their annual awards dinner on Saturday night
A massive thank-you to Rory/Kerry/David and everyone else involved. The money's all adding up...
A specialist optician came out to see Ross this morning and was very positive about his sight. Ross was following lights and objects much more so than we'd seen him do in the past and we're very encouraged to hear some positive news. I guess we need to work on stimulating him a bit more so he'll be able to sit-up with me and watch the Lions beat the Springboks this summer...
Finally, my brother William and his kite-surfing pal's website is live. They're supporting 4 great charities, one of which is NSE and with over a dozen kite-surfers planning to cross from Northern Ireland to Scotland at the end of the summer I'm sure they'll raise lots of money. Please visit www.kitechallenge.com to see what they're doing and to donate if you wish.
Wednesday, 22 April 2009
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