Thursday, 19 February 2009

Ross has finally managed to get over the cough which has been bugging him since Christmas. He's been in much better form the past few weeks and enjoyed a visit from his Gran & Grandad a few weekends ago.

His sleeping is still a little erratic but is hopefully heading in the right direction. He's also eating ok and knows what tastes he likes and what he doesn't - another little something that we never thought he'd be able to do.
With physio starting this week, and first visit to the paediatrician early March things are starting to happen following our trip to Great Ormond Street. Good timing as our stash of medication we brought from France is rapidly coming to an end and we need to get the UK supply sorted.

We enjoyed Valetines Day with a day out to Polesden Lacey National Trust property where there was a chocolate festival. Fin first of all covered his face with chocolate from the chocolate fountain and then got his face painted before scaring all old ladies within roaring distance.

Our only other news for now is that we've had an offer accepted on a house in Bookham. Hopefully it will all go through quite quickly and we'll be in our own house in April!

Friday, 6 February 2009

Let it snow...

After being knee deep in snow last weekend in Glencoe, it felt very bizarre this week being knee deep in snow in our own backyard in sunny Surrey. But snow there was and lots of it. Ross was very pleased...
We didn't quite know how deep it was so we sent Fin out to see if he disappeared or not. There was lots; I scraped 15 inch deep snow off the car roof and nearly did myself in tryng to dig a path to get the car out.
Oxshott took on a ski-resort feel and with no-one able to get to work (and I assume suffering the same remote-access IT issues as me) everyone was out and about, stopping to say hello, snowballs in hand or sledges in tow. I must admit that it did cheer me up no end.
Fin had a ball in the snow, and didn't complain of the cold once, despite eating at least 2 tonnes of the stuff (white only - took the opportunity to educate him on the dangers of yellow snow...).
We had our first full consultation at Great Ormond Street Hospital a few days ago. We didn't go expecting to get any answers which was a good job; I think it's becoming clearer and clearer that we're not doing to get any answers and it's just going to be a case of waiting and see how Ross is from one day to the next. At least the medication regime will be clarified, test results followed up and all the right referrals are happening.
Now we just need more snow...