After 2 further few weeks of trying different anti-epilepsy drugs at different dosages, Ross's convulsions continue and a further EEG test this week showed that his brain activity is still abnormal. As a result the doctors do not seem very optimistic about being able to eliminate Ross's convulsions, or his chances of developing normally. As a further attempt to treat Ross they proposed to try a course of steroids on top of the anti-epilepsy drugs, which will be hard on Ross's body, but given there is a chance it may help we have to try it.
This was obviously not what we wanted to hear, but the good news is that we can manage this treatment from home, returning Ross to the hospital a few times for monitoring, so on the evening of Wednesday 18th June we brought Ross home. Fin was over the moon...
Since Wednesday we have been giving Ross his 9 different medications 3 times a day and looking after him as best we can. We're still hoping for positive news when Ross has his next EEG in 2 weeks time.
The response so far to our fundraising for the National Society for Epilepsy has been staggering and quite overwhelming; including Gift Aid we already have over £4000 for the NSE (on top of the almost £5000 for CLIC Sargent); thank you very much to those of you who have donated via our Archies Mountain website. I also cannot thank enough those of you who have sent us emails or text messages of support - these mean so much to Clair and I.
For now, now that we have Ross back home, we will concentrate on trying to get some normality back into our lives.
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