13th May 2008 - Ross was transferred to intensive care in a specialist neo-natal hospital after suffering convulsions. His brain activity was found to be irregular and he was given convulsion controlling drugs. These knocked him out for most of a week but unfortunately when the level of drugs in his system reduced the convulsions returned. An MRI scan showed no brain damage (initial hypothesis) but repeated EEGs showed continuing abnormal brain activity so doctors started to suspect a metabolic disorder.
26th May 2008 - Ross was transferred to the neurological ward in Necker Hospital for Sick Children in Paris where different convulsion controlling drugs and vitamins treatments were started. A rare type of epilepsy is suspected but numerous tests and drug trials are required to confirm which type. After peaking between 80-100 convulsions per day, the drugs at least started to reduce the number of convulsions. 3rd June 2008 - Ross is still in hospital and is having 5-15 convulsions per day, although in between these he at least now sleeps, feeds and poos like a normal newborn. There is still no diagnosis beyond a rare form of epilepsy, so we still have no idea when we'll get Ross home or what his development will be like.
I have agreed with Rich to delay our Mont Blanc attempt until Summer 2009 and to raise some sponsorship for The National Society for Epilepsy. Visit our website http://www.archiesmountain.com/ and follow the links to donate. Please give generously, and also feel free direct any family, friends and colleagues who you think would be willing to sponsor us to our website.
Thank you very much to everyone who has sent us messages of support - they really do keep us going.
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